Main description:

This book focuses on young people (12-25 years old) growing up with a chronic somatic condition and/or physical disability, facing different challenges during their transition to adulthood and to adult healthcare services. Becoming an adult often proves extra challenging for them, because the adaptive tasks related to living with a chronic condition can clash with developmental milestones. Finding a good balance and integrating these tasks in daily life is also referred to as self-management.

This book addresses self-management and empowerment of young people with chronic conditions as well as the Positive Youth Development concept. It elaborates on theories and approaches and offers a complete overview of self-management interventions for young people with chronic conditions, emphasizing on the tasks of medical, emotion and role management. It also elaborates on the roles and tasks of professionals, as well as the patient-provider relationship; the shifting roles between young people and their parents and the role of peer support.

This book is unique in its broad view on self-management, i.e. it goes beyond medical management and focuses on young people achieving their maximum potential and a good quality of life. Furthermore, the book employs a positive youth development approach, focusing on empowerment and growth rather than problems or issues.

It offers an overview of the state-of-the-art and evidence concerning self-management support for young people with various chronic conditions. As such it is of benefit for all healthcare professionals working in care for young people, but also for researchers interested in this topic.

Contents:

Chapter 1. Introduction
Introduction to the book, definitions
AnneLoes van Staa, Sander Hilberink, Jane Sattoe
Rotterdam University of Applied Sciences

Chapter 2. Theories of self-management of young people with chronic condition
Transitions of young people with chronic conditions: self-management; generic approach, broad view, role of others
Jane Sattoe, AnneLoes van Staa
Rotterdam University of Applied Sciences,

Chapter 3. Positive Youth Development approach to support life skills of young people with chronic conditions
Positive Youth Development approach, empowerment, experiences, outcomes
Gary Maslow
Duke University School of Medicine, USA

Chapter 4. Exploring effectiveness and effective components of self-management interventions for young people with chronic physical conditions: A systematic review

Roles, tasks and views of healthcare professionals
Jane Sattoe, Marjolijn Bal, Pepijn Roelofs, Roland Bal, Harald Miedema, AnneLoes van Staa
Rotterdam University of Applied Sciences, and Amsterdam University of Applied Sciences

Chapter 5. Self-management Support for young people with chronic conditions
The roles and tasks of professionals (as well as the patient-provider relationship)
Janet McDonagh
Centre for MSK Research, University of Manchester, Manchester, UK

Chapter 6. Youth Participation: Incorporating the views of young people
Ways of youth participation and the views of young people
Imelda Coyne, Children's Nursing & Research, Trinity College Dublin, Ireland
Chapter 7. Transition to Adulthood: Shifting roles between young people with chronic conditions and their parents Shifting roles (between young people and their parents)
Jan Willem Gorter
McMaster University, Canada, CanChild Centre for Childhood Disability Research, Canada
Chapter 8. The role of peer support in self-management and empowerment of young people with chronic conditions
The role of peer support
Susan Kirk
School of Nursing, Midwifery and Social Work, University of Manchester, Manchester, UK
Chapter 9. The Skills for Growing Up and Ready Steady Go tools to promote life skills in youth with chronic conditions
Experiences with and outcomes of the Skills for Growing Up and Ready Steady Go programs
Sander Hilberink, Jane Sattoe, Marij Roebroeck, Arvind Nagra, AnneLoes van Staa
Rotterdam University of Applied Sciences, and Amsterdam University of Applied Sciences
Chapter 10. Conclusions
Concluding remarks
Jane Sattoe, Sander Hilberink, AnneLoes van Staa
Rotterdam University of Applied Sciences