Main description:

This resource offers an overview of the rare genetic disease SCID, and how families affected by it cope. Chapters cover the effects of early hospitalisation on children, children's perceptions of illness and health, the psychosocial effects on the family, and much more.

Contents:

Preface.
Acknowledgements.

Introduction to the family.

Chapter 1: Background to the study on children with SCID and their families.

Chapter 2: Severe Combined Immunodeficiency - a brief overview.

Chapter 3: Effects of early hospitalisation on children.

Chapter 4: The effects of isolation and bone marrow transplantation on the child and family.

Chapter 5: Children's perceptions of illness and death.

Chapter 6: Stressors and coping mechanisms.

Chapter 7: Psychosocial effects on the children.

Chapter 8: Anger, aggression, and antisocial behaviour in children.

Chapter 9: Neurotic and depressive behaviour in children.

Chapter 10: Psychosocial effects on the family.

Chapter 11: Attachment and alienation.

Chapter 12: Post-traumatic stress disorder and children.

Chapter 13: Post-traumatic stress disorder in families.

Conclusion.

Glossary.

Appendix A.

References.